Tag Archives: Juvenile Dermatomyositis

Please Help Us Find a CURE For JDM in 2014

We are very fortunate. Lucky even. We often say that we have so much to be thankful for because we have a very healthy sick child. Elia appears to be like every other 2-year-old. She loves to sing, dance, run, … Continue reading

Posted in Elia, Family Updates, Fundraising, JDM, Juvenile Dermatomyositis | Tagged , , , , , , , | 2 Comments

So Thankful: An Update on Elia

Two weeks ago today we took Elia to the pediatric dermatologist and everything changed. That is, everything except our sweet, beautiful, brave Elia. Since being diagnosed with Juvenile Dermatomyositis (JDM) she has been poked, cut, examined, starved, medicated and put through … Continue reading

Posted in Elia, Family Updates, JDM, Juvenile Dermatomyositis | Tagged , , , , , , , | 1 Comment

We Have Always Known She Was 1 In A Million

This will be the hardest post I have ever written. Why? Because our baby girl’s health is in question and we are heartbroken. Let’s back up. Around St. Patrick’s Day Elia had a mysterious rash appear on her knuckles. At … Continue reading

Posted in Elia, Family Updates, JDM, Juvenile Dermatomyositis | Tagged , , , , | 23 Comments