Tag Archives: Sensitivity to Sun

Please Help Us Find a CURE For JDM in 2014

We are very fortunate. Lucky even. We often say that we have so much to be thankful for because we have a very healthy sick child. Elia appears to be like every other 2-year-old. She loves to sing, dance, run, … Continue reading

Posted in Elia, Family Updates, Fundraising, JDM, Juvenile Dermatomyositis | Tagged , , , , , , , | 2 Comments

Family Updates and Mad Dance Skills

It’s been awhile. Thanks for sticking around. First of all, I’d like to thank all of you that have left comments, emailed, texted, and posted on our Facebook pages. Every ounce of support has been appreciated and has been ¬† … Continue reading

Posted in Elia, Family Updates, JDM, Juvenile Dermatomyositis, Zavier | Tagged , , , , , , , , , , , , | 1 Comment

So Thankful: An Update on Elia

Two weeks ago today we took Elia to the pediatric dermatologist and everything changed. That is, everything except our sweet, beautiful, brave Elia. Since being diagnosed with Juvenile Dermatomyositis¬†(JDM) she has been poked, cut, examined, starved, medicated and put through … Continue reading

Posted in Elia, Family Updates, JDM, Juvenile Dermatomyositis | Tagged , , , , , , , | 1 Comment

We Have Always Known She Was 1 In A Million

This will be the hardest post I have ever written. Why? Because our baby girl’s health is in question and we are heartbroken. Let’s back up. Around St. Patrick’s Day Elia had a mysterious rash appear on her knuckles. At … Continue reading

Posted in Elia, Family Updates, JDM, Juvenile Dermatomyositis | Tagged , , , , | 23 Comments